Potential Complications and Challenges Experienced by Children with Cleft Lip and/or Palate - myFace (2024)

Even after surgery, children living with clefts can continue to face challenges depending on the type and severity of the cleft.

Complications from Cleft Lip and/or Palate require additional treatments and support services:

Fistula – This is the most common complication associated with cleft palate surgery, occurring in about 9% of cases. In patients with cleft lip with cleft palate, a fistula can occur in up to 18% of cases after surgery. A fistula is a residual hole in the roof of the mouth. The main symptoms are nasal regurgitation of food and liquids, and speech difficulties, such as hypernasality and articulation problems.

Velopharyngeal Insufficiency – This is a speech problem that occurs when air leaks around the back of the soft palate during speech. This may be due to a short, or immobile palate. The first line of treatment is speech therapy. However, if this does not help patients to improve, an additional surgery (called secondary palatal management) may be necessary.

Maxillary hypoplasia – Maxillary hypoplasia is the undergrowth of the upper jaw. This may be partly due to the cleft itself, and partly due to scarring from surgical interventions. Regardless of its cause, approximately 25-50% of people born with cleft lip/palate undergo surgical correction for jaw undergrowth. The degree of hypoplasia, and the need for surgical intervention, are higher with increased severity of the cleft. Orthodontics can sometimes correct this, but many adolescents also require orthognathic (jaw) surgery or distraction osteogenesis.

Psychosocial services

Due to the stress of multiple medical interventions, and possible low self-esteem related to having a facial difference, follow up with a psychologist or social worker may be beneficial.

With surgical repair and the proper follow up care and services, most children with clefts will lead a normal, healthy, long life. However, some children may struggle with ongoing challenges, and proper mental and emotional health support and care should be provided.

Aside from engaging with psychologists and other specialists, parents can also support their child in many ways:

  • Focusing on positive qualities (aside from physical appearance) of the child and others
  • Build the child’s confidence by allowing them to make their own decisions, participate in activities they enjoy, and encouraging confident body language

Being available and open to communication, so that issues involving bullying and self-esteem can be recognized and addressed

Potential Complications and Challenges Experienced by Children with Cleft Lip and/or Palate - myFace (2024)

FAQs

Potential Complications and Challenges Experienced by Children with Cleft Lip and/or Palate - myFace? ›

Beyond the cosmetic abnormality, other possible complications that may be associated with cleft lip and cleft palate include: Feeding difficulties. Feeding difficulties occur more with cleft palate abnormalities. The infant may be unable to suck properly because the roof of the mouth is not fully formed.

Which is a potential complication of a cleft lip and palate? ›

Beyond the cosmetic abnormality, other possible complications that may be associated with cleft lip and cleft palate include: Feeding difficulties. Feeding difficulties occur more with cleft palate abnormalities. The infant may be unable to suck properly because the roof of the mouth is not fully formed.

What is the common complication for infants with cleft lip and palate? ›

Children with cleft lip with or without cleft palate face a variety of challenges, depending on the type and severity of the cleft.
  • Difficulty feeding. ...
  • Ear infections and hearing loss. ...
  • Dental problems. ...
  • Speech difficulties. ...
  • Challenges of coping with a medical condition.

What are the complications of cleft lip and palate surgery? ›

Damage to deeper structures – such as nerves, blood vessels, muscles and auditory canal can occur and may be temporary or permanent. Infection. Irregular healing of scars including shortening, thickening or overgrowth. Poor healing of incisions.

What is a major long term problem for a child with a cleft lip and palate? ›

hearing problems – some babies with a cleft palate are more vulnerable to ear infections and a build-up of fluid in their ears (glue ear), which may affect their hearing. dental problems – a cleft lip and palate can mean a child's teeth do not develop correctly and they may be at a higher risk of tooth decay.

What are the challenges of cleft lip? ›

Individuals with cleft lip and palate may experience difficulties in one or more of the areas listed below.
  • Resonance and Airflow. ...
  • Articulation. ...
  • Early Speech and Language Characteristics. ...
  • Voice. ...
  • Feeding and Swallowing. ...
  • Dental Anomalies and Malocclusion. ...
  • Hearing.

What are the common impacts of cleft lip cleft palate defects? ›

Children with a cleft lip or a cleft palate, depending on the size of the openings, may have problems eating and breathing. As they grow older, they may also have speech and language delays. Children with cleft lip or palate are also more likely to have ear infections, hearing loss, and problems with their teeth.

What are the risk factors for cleft lip and palate? ›

The most impactful factor was not taking folic acid during pregnancy. The primary risk factors associated with cleft lip and palate include a family history of the condition, lack of folic acid supplementation, maternal age over 35 years, and high temperatures exceeding 39 °C.

What is the most common anomalies associated with cleft lip and palate? ›

Speech and language delay

Proper speech is dependent upon many factors, but the most common problems associated with cleft lip and palate are related to articulation and nasal escape during speech. Nasal escape may be caused by a short palate or by palate dysfunction due to problems with the palatal muscle.

Do babies with cleft palate have other issues? ›

Children with cleft lip or cleft palate require early evaluation by a dentist familiar with their special needs. These children may have problems with poorly positioned, malformed, or missing teeth. With early detection and intervention, children with cleft lips or cleft palates can lead normal, healthy lives.

What are the dental problems in cleft lip and palate? ›

Many children born with a cleft of the lip and/or palate will have missing teeth, particularly in the line of the cleft. They may also have extra teeth, misshapen or malformed teeth (Figure 1). As a result their teeth can be crowded, tilted or rotated (Figure 2).

What is the syndrome with cleft lip and cleft palate? ›

Some of the conditions which may involve a cleft are:
  • Pierre Robin sequence.
  • Stickler syndrome.
  • Velocardiofacial syndrome (VCF)
  • Treacher Collins syndrome.
  • Oculo-auriculo-vertebral spectrum (OAV) / Goldenhar syndrome / hemifacial microsomia.
  • Van der Woude syndrome.

What are the side effects of palate surgery? ›

Risks of this surgery are:
  • Damage to the muscles in the throat and soft palate. You may have some problems keeping liquids from coming up through your nose when drinking (called velopharyngeal insufficiency). Most often, this is only a temporary side effect.
  • Mucus in the throat.
  • Speech changes.
  • Dehydration.
  • Bleeding.

What are the difficulties with cleft lip? ›

Babies born with a cleft lip or cleft palate may have difficulties eating (both from the breast and a bottle). They may also have trouble speaking, and they often have fluid behind their eardrum that can affect their hearing. Some also have issues with their teeth.

What are the problems with cleft palate in adulthood? ›

It is not unusual for functional problems related to the cleft to remain into adulthood. These may include speech problems, hearing problems, fistulas (small holes in the palate), dental problems, or breathing problems due to nasal obstruction, to name only a few.

At what age should a cleft lip be repaired? ›

Most times, cleft lip repair is done when the child is 3 to 6 months old. For cleft lip surgery, your child will have general anesthesia (asleep and not feeling pain). The surgeon will trim the tissues and sew the lip together. The stitches will be very small so that the scar is as small as possible.

Which syndrome is most commonly associated with cleft lip and palate? ›

Children with Van der Woude syndrome typically have a combination of a cleft lip and/or cleft palate in addition to a pit or slit on both sides of the lower lip. These slits, or depressions, are usually the same on both sides of the mouth, although their appearance can range from very wide to barely noticeable.

What are the risk factors for cleft lip palate? ›

Cleft lip and cleft palate are thought to be caused by a combination of genes and other factors. CDC research has found some factors that increase the risk of having a baby with an orofacial cleft: Smoking during pregnancy12. Having diabetes before pregnancy (type 1 or 2)3.

What are the specific symptoms of cleft lip and palate? ›

Symptoms of cleft lip and palate may include:
  • Crooked, poorly shaped or missing teeth.
  • Misalignment of teeth and jaw.
  • Deformities of the upper jaw (maxilla)
  • Speech problems.
  • Unrepaired oronasal fistulae, which is a hole between the mouth and nose cavity.
  • Alveolar clefts, which are defects in the bone that supports the teeth.

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